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Updated October 28, 2010
The purpose of this research is to understand consumer
perceptions of allergen labels and precautionary statements
on packaged foods.
In order to do this, we would like to take about one
hour of your time to either:
a) accompany you on a grocery store shopping trip
b) review products in your kitchen cabinets
We will interview you about your preferences for allergen
labels and thought processes behind your purchasing decisions.
If you or someone in your family has an allergy to
peanut, tree nut, and/ or sesame please contact:
Ms Bonnie Chow
905 525 9140 ext 20440
[email protected]
All participants will receive a $50 grocery store gift card
as a token of appreciation.
Must be 18 or older to participate.
The study is expected to be completed by August 2011.
This research has been approved by the McMaster University
Research Ethics Board [#2010-093], and is funded
by the AllerGen NCE (www.allergen-nce.ca).
(Posted Jan. 21, 2010)
A study is being conducted at McGill University Health Centre
in Montreal. The purpose of this study is to assemble a database
(registry) of information on peanut allergic individuals in
Canada. This information will help the research team learn
more about the diagnosis, impact and management of peanut
allergy.
To learn more about this study, click on:
PDF document - Peanut
Registry
For more information
Please contact Research Coordinator
Christina Neville at (514) 934-1934, ext: 44720
Toll free number: 1-888-634-9035
Email: [email protected]
(Posted Jan. 21, 2010)
A study is being conducted at McGill University Health Centre
in Montreal. The purpose of this study is to assemble a database
(registry) of information on sesame allergic children in Canada.
This information will help the research team learn more about
the diagnosis, impact and management of sesame allergy.
To learn more about this study, click on:
PDF document - Sesame
Registry
For more information:
Please contact Research Coordinator
Christina Neville at (514) 934-1934, ext: 44720
Toll free number: 1-888-634-9035
Email: [email protected]
(Posted Sept 18, 2009)
Our research team, led by Drs. Larry Lynd and Carlo Marra
at the University of British Columbia, is seeking volunteers
to participate in focus groups about product labeling for
food allergens.
The Canadian government has recently recommended creating
new guidelines for labeling pre-packaged foods for allergens.
However, little is known about how consumers would prefer
these products be labeled.
Who Can Participate? What is Involved?
We are looking for adults (aged 19 or older) who have food
allergies, or who are the parent or guardian of a child with
food allergies, to attend a one-hour focus group discussion
in the City of Vancouver and City of Victoria.
Participants will be asked to discuss their preferences surrounding
different ways foods could be labeled for allergens.
Information gathered during these sessions will be used to
design a large-scale study on product labeling for food allergens.
This study will help researchers recommend strategies for
allergy avoidance and anaphylaxis prevention through food
product labeling. Your opinion matters.
Participants will receive a $25 honorarium.
When?
Focus groups will take place between October and November
2009.
Contact Information
For more information or to participate in a focus group, please
contact the research coordinator below by August 7, 2009.
Stephanie Harvard, MSc.
Collaboration for Outcomes Research and Evaluation (CORE),
University of British Columbia
Tel. (604) 806-8817
Email: [email protected]
http://www.core.ubc.ca/
This project is being funded by AllerGen NCE Inc., the Allergy,
Genes and Environment Network (www.allergen-nce.ca), a national
research network that supports asthma and allergy research
with the potential to significantly improve the health of
Canadians and generate economic benefits.
(Posted March 4, 2009)
Mothers, do you have a child allergic to shellfish,
such as shrimp, lobster, crab, mussels, or oysters?
We are requesting your help to determine what factors during
pregnancy and early life might contribute to the development
of anaphylaxis. We hope that in the future this will help
inform the prevention of this increasingly common condition.
We are asking you to fill out an online survey that asks questions
about your pregnancy with THE OLDEST CHILD IN THE FAMILY to
have an allergy to shellfish. Your participation is confidential.
The survey is simple and should not take more than 5 or 10
minutes. Some of the information we would like to know includes:
Do NOT answer questions here,
these are sample questions only. Click on the link at the
bottom to complete the survey.
1. What is your Rh blood type?
(When we are told our blood type, it is usually expressed
as a letter followed by either a positive (+) or negative
(-). This + or - refers to the Rh system of blood.)
| Rh positive |
Rh negative |
Do not know |
2. Did you receive Rh immune globulin (RhoGAM) during that pregnancy?
3. At the time that your child was conceived (at the time that
you actually became pregnant) were you taking a multivitamin
supplement containing folic acid or a folic acid supplement?
4. If you were NOT taking a multivitamin supplement containing
folic acid or a folic acid supplement at the time that your
child was conceived, did you START taking a supplement once
the pregnancy was suspected or confirmed?
5. If you were taking a multivitamin supplement containing folic
acid or a folic acid supplement at the time that your child
was conceived, or when the pregnancy was suspected or confirmed
- did you continue to take the supplement throughout the duration
of this pregnancy?
We invite you to print these out and complete them with your
doctor/care provider to ensure the accuracy of your results.
Once you have this information at hand, the survey is simple
and should not take more than 5 or 10 minutes.
The deadline for completing the survey is April 6, 2009.
This study is being conducted by researchers at Sunnybrook Health
Sciences Centre and St. Michael's Hospital. It has been approved
by the appropriate Research Ethics Board. The information you
supply will be strictly confidential, and your participation
is completely voluntary.
Click
here to BEGIN the survey now.
Thank you for your participation.
Principal Investigator:
Dr. Karen E. Binkley
Associate Professor, University of Toronto
Division of Clinical Immunology and Allergy
Tel: 416 968- 7010
(Posted April 9, 2008)
Dear parent of a child with anaphylaxis,
We are inviting you and your family to help design and/or
participate in a fun and innovative program for children and
teens with anaphylaxis or asthma that aims to increase their
quality of life by:
- increasing social networks,
- improving coping skills, and
- improving risk management and health behaviours.
We are currently conducting mail-out surveys with teens (ages
12-15) and interviews with children (ages 7-11) and their
parents to find out more about their support needs. Additionally,
we are looking for young adults ages 17-20 who would be interested
in becoming online peer mentors for teens with asthma/anaphylaxis.
Training, support and a certificate of completion would be
provided for all peer mentors.
This project is funded by AllerGen and works with scientists
from many Canadian universities including, Alberta, Athabasca,
British Columbia, McMaster, New Brunswick, and Toronto. This
project has received approval from the appropriate research
ethics boards.
You can help us by completing a brief online survey to give
us your contact information by clicking on the following link:
http://www.surveymonkey.com/s.aspx?sm=GWl61b1ImTXUwmgWfLQhOQ_3d_3d
Someone from our research team will then contact you to tell
you more about the study and schedule a time where we can
ask questions about you and/or your child with anaphylaxis.
Your participation is completely voluntary. For more information
about our research team, or this study, please visit our website
at www.ssrp.ualberta.ca
Through your participation we hope to design innovative and
relevant support programs for children and teens with anaphylaxis
and /or asthma and their parents. If you have any questions
or concerns about completing the survey or about your participation
in this study, you may contact:
Jody Macdonald, Research Coordinator
Social Support Research Program
University of Alberta
T: 1-866-427-4805 (toll free) or (780) 492-8945 (direct line)
E: [email protected]
Thank you very much for your time and effort, it is truly
appreciated!
(Posted April 3, 2008)
Children, Adolescents, and Parent(s) needed for Research.
Our research team, led by Dr. Susan Elliott of McMaster University
in Ontario, is interested in volunteers to take part in a
study to learn more about people’s experiences with
severe food allergies.
Parent(s) or guardian(s) will be asked to take part in a face-to-face
interview that should take approximately 60 minutes. They
will also be asked to permit their child or adolescent to
participate in the study. If children and adolescents also
agree to take part in the study, they will be asked to draw
a picture that illustrates what it is like to have a food
allergy and to also participate in a 30 minute face-to-face
interview. During the interview, children and adolescents
will be asked to answer questions about their food allergy,
their experiences dealing with a food allergy at home and
at school, and their feelings about living with a food allergy.
The information gathered from this study will help us better
understand various aspects of quality of life at home and
school and the necessary steps to create safe spaces for children
with life-threatening allergies.
How can you volunteer:
We require participants from Ontario. Due to project resources,
it would be preferable if you live in a major city. We are
looking for parent(s) or guardian(s) with children and adolescents
who have life-threatening food allergies who attend public
or separate schools in the following age ranges:
· Children 8 -12 years old
· Adolescents 13 -18 years old
The interviews will take place starting in April 2008 and
will continue until the end of June.
Contact Information:
For more information about this study, or to volunteer to
participate, go to http://www.science.mcmaster.ca/geo/faculty/elliott/sabrinas_law.html
or contact:
Nancy Fenton, PhD
McMaster University
GSB - 114, 1280 Main Street West
Hamilton, Ontario L8S 4K1
(905) 525-9140 Ext. 23522
[email protected]
http://www.science.mcmaster.ca/geo/faculty/elliott/sabrinas_law.html
This project is being funded by AllerGen NCE Inc., the Allergy,
Genes and Environment Network (www.allergen-nce.ca),
a national research network that supports asthma and allergy
research with the potential to significantly improve the health
of Canadians and generate economic benefits.
.
(Posted: June 6, 2007)
We need your help in understanding the social support education
needs of youth with asthma and/or life threatening allergies.
A multi-institutional team, including investigators from the
University of Alberta, is developing an online support-education
program for youth (12-15 year olds) with asthma and/or life-threatening
allergies to create a supportive youth network from rural
and urban communities across Alberta using online technologies.
The online intervention will involve education and peer discussions
around coping skills specific to asthma and/or allergy management,
relationships with family and friends, and teasing and bullying.
Health professionals and older youth who have asthma and/or
allergies will provide education and facilitate discussions.
How you can help:
We require participants who live in Alberta: Edmonton, Calgary,
Lethbridge and surrounding areas, and Grande Prairie and surrounding
areas.
1. We are looking for 12-15 year olds with
asthma and/or life threatening allergies who will take part
in a 5 month program which involves online surveys as well
as some group discussions. Participant feedback will help
us better understand whether online peer support is helpful
to youth with asthma and/or allergies. Participants will be
asked about support received and needed and ways to deal with
these conditions.
2. We are also looking for 18-20 year olds
with asthma and/or allergies who want to help youth at risk
for the same conditions. Peer mentors will participate in
the needs assessment, will be trained in online mentoring,
and then asked to facilitate an online support group over
a 5 month period, starting in January 2008.
Recruitment for the project is ongoing, however, we encourage
those who are interested in participating to contact us by
August 31st, 2007 in order to assist us in the development
phase of the project.
Contact Information:
If you have a child who may wish to participate or for more
information, please contact:
Heather Wearmouth, Research Assistant
Email: [email protected]
Tel: (780) 492-8031
or
Christine Daum, Program Coordinator
Email: [email protected]
Tel: (780) 492-8033
:
Our research team, led by Dr. Ann Clarke of the Division of
Allergy and Clinical Immunology at the Montreal General Hospital,
McGill University Health Centre, Dr. Reza Alizadehfar of the
Division of Allergy and Clinical Immunology at the Montreal
Children’s Hospital, McGill University Health Centre
and Dr. Rhoda Kagan at the North York General Hospital, Toronto,
is interested in learning more about how peanut allergy affects
your child or you (if you are under 25 years of age). We wish
to invite you to participate in a research study that we are
conducting
To be eligible, individuals should be:
1. Under 25 years of age AND
2. Diagnosed by a physician as having a peanut allergy.
The purpose of this study is to assemble a database (registry)
of information on peanut allergic individuals under the age
of 25 in Canada. This information will help the research team
learn more about the diagnosis, impact and management of peanut
allergy.
If you agree to participate, you will be contacted by a member
of our research team by mail once a year to invite you to
complete questionnaires. These will take no more than 10 minutes
to complete. You will be asked questions about accidental
exposures to peanut as well as questions about other allergies.
Should you wish to participate in our database and/or require
additional information, please contact:
Ms. Elizabeth Turnbull, Acting Study Coordinator
Tel : 1-888-634-9035 or at (514) 934-1934 extension 44831
or at (514) 406-3577 (24-hour pager number).
Email: [email protected]
:
Anaphylaxis Canada, in partnership with the Canadian Allergy,
Asthma and Immunology Foundation, launched a new research
award for anaphylaxis in fall 2004.
Drs. Kent HayGlass and Estelle Simons at the University of
Manitoba in Winnipeg (the recipients of the award) have an
exciting initiative in basic research which aims to identify
the causes of peanut allergy. The goal is to understand this
immune reaction so that food allergies can be prevented and
cured.
The research centres on the immunological hormones or cytokines
that control immunity. The goal is to better understand “why
some people develop peanut allergy while others do not”
and “why people sometimes grow out of it”. This
research would benefit from blood samples from people who
are peanut allergic and those who used to be but are no longer.
Blood samples (about 2-3 tablespoons) are required from 20
people who are peanut allergic and have had a reaction in
the last five years OR people who used to be peanut allergic
and now are not. Volunteers would set up a time to visit the
University of Manitoba in Winnipeg, have a clinical history
taken and provide a small blood sample. A small honorarium
will be provided to cover gas and parking expenses.
If you would like more information, please contact:
Dr. Kent HayGlass, Ph.D.
Canada Research Chair in Immune Regulation
Director, CIHR Training Program in Allergy and Asthma Research
Professor and Head, Department of Immunology
University of Manitoba
730 William Ave.
Winnipeg, Manitoba R3E 0W3
Email: [email protected]
Phone: (204) 789 3509
We would like to make you aware of a study being done by Dr.
Warrington, a Canadian allergist and researcher. The purpose
of the study is to define guidelines for the safety of re-administering
penicillins now that physicians lack the most important skin
test reagent Benzylpenicilloyl polylysine (the major determinant)
which has been withdrawn by Health Canada and the FDA. There
is a blood test or RAST that may be a useful substitute if safe
levels can be defined.
Potential study participants are those who have suffered an
anaphylactic or immediate reaction to a penicillin medication
of some type. Criteria are outlined below:
1. The reaction should have occurred within the last two years.
2. The reaction should have developed within no more than 48
hours of starting the antibiotic.
3. The reaction should have consisted of:
a) hives &/or swelling, or
b) generalized itchy rash, or
c) low blood pressure with rash, or
d) wheezing or chest tightness with rash
1. There should have been no other explanation for the reaction,
such as other new medications started at the same time or possible
food allergy.
2. If skin testing was later carried out by an allergist, these
tests should have been positive.
Anyone interested in participating in the study would be asked
to complete a questionnaire and provide a single blood serum
sample of approximately 5cc (blood sample could be taken locally
and shipped through the local allergist or doctor). The only
personal data that would be required would be initials, male
or female and age.
For more information, please contact Dr. Warrington:
R. J. Warrington, MB, BSc, PhD, FRCP(C)
Head, Section of Adult Allergy & Clinical Immunology
Winnipeg Health Sciences Centre
Email: [email protected]
Over two years ago, Anaphylaxis Canada was invited to participate
in the application process to establish a Network of Centre
of Excellence in Canada, dedicated to allergy research. As part
of its mandate, Anaphylaxis Canada both supports and conducts
research. While the first application was turned down, the group,
led by Dr. Judah Denburg, was asked to re-submit a proposal
for the 2005 competition. AllerGen will receive CDN $20,865,000
from 2005 to 2009 for research on allergic disorders. We
are thrilled to have been part of this process and are optimistic
about this new pool of funds available for research. For more
information, go to: http://www.nce.gc.ca/media/newsrel/2004/051104b_e.htm
We are proud to announce the first recipient of the Anaphylaxis
Canada / Canadian Allergy, Asthma and Immunology Foundation
Research Award. Dr. Kent HayGlass, University of Manitoba, will
investigate the regulatory response in non-allergic people and
those with severe peanut allergy. The goal is to identify differences
in immune regulatory mechanisms that control whether a given
individual, once his/her immune system is activated by peanut
exposure, goes on to develop peanut allergy. Anaphylaxis Canada
is committed to providing CDN $50,000 a year for the research
award.
Families
Coping with a Diagnosis of Anaphylaxis in a Child.
A Qualitative Study of Informational and Support Needs
Dr. Mandell and her team explore the emotional needs of families
coming to terms with a diagnosis of anaphylaxis.
(With permission from Allergy
& Clinical Immunology International. This study was funded
by the Anaphylaxis Foundation of Canada and published in Vol.
14 (3), 2002, pp. 96-101. C2002 by Hogrefe & Huber Publishers
. USA . Canada . Germany . Switzerland)
A Study of
32 Food-Induced Anaphylaxis Deaths in Ontario; 1986-2000
A few well-publicized Ontario deaths in the early 1990's drew
significant attention to anaphylaxis and, in particular, emphasized
the potential lethality of peanut and tree nut allergies.
Ipsos-Reid:
Awareness of Peanut or Nut Allergies Amongst Canadians
In 2001, Nestl� Canada Inc. commissioned Ipsos-Reid to conduct
a survey of Canadian attitudes towards peanuts and tree nuts
and invited Anaphylaxis Canada to collaborate on the project.
Toronto
District School Board Study
Anaphylaxis Canada conducted a study of the Toronto District
School Board in the Fall of 2001 and found several interesting
pieces of information. This study was made possible by an unrestricted
grant from Kellogg Canada Inc.
Last date modified on
Thursday, October 28, 2010
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